Kat’s Kourage — Kathryn Blalock

Hailing from Edmond, Oklahoma, Kathryn lives with Bardet-Biedl Syndrome, blindness, and obsessive-compulsive disorder. Kathryn is the social media manager for the Bardet-Biedl Syndrome Foundation and is passionate about disability advocacy, horseback riding, boxing, baking, caring for children, and writing. She shares her story to offer hope and encouragement.

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How OCD took over my life, and what I did to get it back, part 1

First in a series. When people think about my life with Bardet-Biedl syndrome, what might come to mind first is my vision loss, but one of the hardest challenges I have faced has been severe obsessive-compulsive disorder (OCD), which is often associated with the condition. As a…

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Accepting my blindness came down to choosing freedom over fear

Accepting my blindness was a long, hard-fought process. My blindness is caused by Bardet-Biedl syndrome, a rare genetic condition. For the longest time, I did not want to accept my blindness. However, once I finally came to terms with my reality, I felt a sense of freedom. For years,…

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My journey with blindness from Bardet-Biedl syndrome began as a child

When I think about how Bardet-Biedl syndrome, an inherited multisystemic disorder, has affected my life, the first thing that comes to mind is how much my vision has been affected. My journey with vision loss began very early in life. I was around 2 years old the first time…

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My life with Bardet-Biedl syndrome is about more than a diagnosis

From birth, my story was marked by uncertainty. My kidneys were so enlarged that doctors didn’t expect me to live. At first, they believed I had autosomal recessive polycystic kidney disease, but then I survived. As I grew, doctors continued to keep an eye on me and closely monitored my…